So our meeting with the surgeon wasn't what I expected. Mostly because the best they can do is tell you they have to wait until the baby is born before they truly know how they will proceed. I think also for myself it shattered the dream that they could repair this right away. Basically with the liver residing in the Omphalocele (and outside the tummy) the abdominal cavity is smaller then normal meaning they just can't put it back in easy peasy. It has to go in slowly which means multiple surgeries and a stay of approximately a month at the hospital.
I know Wee Smith won't remember it but you can't help but feel for it and all it will go through. But a wise person shared with me what got them through their tough times with their little one they kept telling themselves "What's the alternative?". There isn't one so we just have to get use to it and remind ourselves that we are lucky that modern medicine can fix this and we still get the precious Wee Smith in the end.
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